Formed in 1980, we support affected families and young people by providing information, emotional support, research funds and a voice for all affected. 

How would you feel if your beautiful new-born baby or your previously active teenager was diagnosed with a life-threatening liver disease? Each week in the UK, this happens to twenty children. It could be your child or your grandchild. There’s no magic wand or quick fix.

Children’s Liver Disease Foundation works with families and young people, helping them take control of their lives, by providing accurate, clear information on these rare and complex conditions, emotional support in coping with their feelings and worries and representing their voice to those who make decisions about their care. Together we help young people to create a new life path, where their liver disease is just one part of who they are.