Information and Research Hub Manager

Salary: £26,000-£31,000 dependent on experience

Full time position, 35 hours per week

Closing date: 9am, Monday 23rd April

Interviews: Tuesday 1st May

 

Children’s Liver Disease Foundation (CLDF) is a national charity based in Birmingham. We take action against the effects of childhood liver disease, providing information, support, research funds and a voice for all affected

  • There are over 100 different liver diseases that can affected babies, children or young people
  • Every week 20 children in the UK are diagnosed with a life-threatening liver disease
  • More children in the UK are currently diagnosed with a liver disease than childhood leukaemia
  • There were at least 2,800 hospital admissions for paediatric liver disease during 2013/2014 in the UK
  • There are up to 100 liver transplants carried out on children in the UK every year
  • For most childhood liver diseases the cause is unknown
  • Liver disease has no cure: it is a lifelong condition requiring a lifetime of care
  • CLDF is the only UK charity dedicated to fighting all forms of childhood liver disease

Find out more about the difference we make on our website.

Information empowers and research helps find answers and treatments. We are looking for an exceptional candidate who has the vision to develop and deliver this role within our ambitious and growing charity, thus contributing to making a difference to young people and their families.

You will be responsible for responding to medical enquiries, managing the review and development of patient and parent resources, including literature and apps, whilst keeping CLDF informed of relevant research in the field and its subsequent dissemination to supporters. The role will be responsible for establishing an exciting new research hub which will support patients and families to improve the design of research applications made by external groups. The Information and Research Hub Manager will take responsibility for CLDF’s health information campaigns and will elicit the views of our families and young people on a wide range of policy related issues to help inform our voice work.

Educated to degree standard with experience of delivering health information to the public through a variety of mediums, including using digital technologies, you will need to demonstrate that you have a thorough knowledge of the workings and structures within the NHS. The successful candidate will need to demonstrate the ability to work in a team, be capable of working independently with initiative and achieve targets and support the charity to achieve its overall mission.

If you’re a hardworking, tenacious and outgoing individual, we’re interested to hear from you.

Please note that a Disclosure and Barring Service (formerly CRB) check will be undertaken.

Click here to view the full job description.

To apply, please click here to download and complete the application form and return it with a covering letter/email to hr@childliverdisease.org. If you should need any further information please call 0121 212 3839.

Closing date for applications is 9am, Monday 23rd April.

Interviews for the post will take place on Tuesday 1st May at our offices in Birmingham city centre, a 5-10 minute walk from Snow Hill and New Street stations.