Comments for Childrens Liver Disease Foundation

Comment on Helping parents through those sleepless nights by Summiya

Summiya — Thu, 11 Jun 2026 20:57:34 +0000

This really resonated with me. My 2-year-old son has lived with biliary atresia and even after transplant he still struggles with sleep. He hasn’t slept through the night since birth and often wakes in the middle of the night crying or seeming unsettled, sometimes almost like he’s hallucinating. It’s eye-opening to see this discussed so openly because it really reflects my daily reality. I am exhausted from broken sleep.

Comment on It was all just normal to me by Wendy Brown

Wendy Brown — Fri, 06 Mar 2026 22:14:22 +0000

In reply to Graham Gordon. Hi Graham, it's lovely to hear from you. We hope you are well and happy? We often think about you. You were a fantastic, friendly, knowledgeable and reassuring support to our family while Beth was so very ill and we were going through such a traumatic time. Until we got to the Liver Unit at Birmingham and met you and the rest of the fabulous team, we were totally clueless about what Beth was going through and how best to help her. Everything seemed hopeless to us then but now, fortunately 31 years later we hope Beth's story might help others. Once again we thank you so much

Comment on Never worry about your future by Verna Mason

Verna Mason — Sun, 22 Feb 2026 13:50:34 +0000

Oh wow. I didn’t fully know your whole story Frankie. What an inspiring read. I cannot imagine how frightening it must have been for your parents. It’s a beautiful thing to know that your transplant has enabled you to become the lovely mother you are today. Also how hard it must have been for the donors parents. Although bittersweet and heartwarming at the same time to see you thrive. I am a donor and as we can see in your story just how important it is to make life matter by being a one and making a difference. Well done Frankie x

Comment on Never worry about your future by Jacqueline jones

Jacqueline jones — Sun, 22 Feb 2026 10:28:36 +0000

All our love always jacs andy and lee xxx you are truly an inspiration to anyone who like you has been through so much

Comment on The second chance feeling by Carly

Carly — Sun, 08 Feb 2026 19:44:32 +0000

We are one week in to our daughters diagnosis and reading this was like reading our own story. They are so little to have this big thing to deal with

Comment on Our unique bond by Zoe Blackham

Zoe Blackham — Sun, 18 Jan 2026 09:10:54 +0000

Forever grateful to our donor family and the medical team and it’s lovely that CLDF still remain in touch with us. X

Comment on The package is well worth it! by Andy hulme

Andy hulme — Sat, 08 Nov 2025 18:35:24 +0000

Thank god your good now.my wife is nearly 1 years post .she s lovely .I got a thumbs up from axel rose for commenting on your post ..is he any relation to you.x

Comment on It was all just normal to me by Julie Powell

Julie Powell — Fri, 07 Nov 2025 06:59:03 +0000

I have tears streaming down my face reading your story. Well done to Beth and her family and it is lovely to hear how well she is doing.
My son had a similar start but fortunately his kasai at 7 weeks worked and his own liver kept doing the job until he was 23 and got a new liver.
Be proud of your scars my son is. Without them we wouldn’t have him xx

Comment on It was all just normal to me by Graham Gordon

Graham Gordon — Thu, 06 Nov 2025 16:25:00 +0000

I remember you all so well. Feel quite emotional reading your continued story of embracing life and making a difference for so many others. Well done Beth. Great admiration for you both Graham and Wendy.

Comment on It’s made me feel much more confident by Gemma

Gemma — Wed, 29 Oct 2025 21:21:42 +0000

Thanks for this Mirri. My daughter has just been diagnosed also at 14 so we will definitely read your blogs. She asked about DofE and your great recap has given her hope that she too will be able to do her Bronze. Thanks very much and I hope you are still doing so well 🙂