Comments for Childrens Liver Disease Foundation

Comment on We just deal with what comes our way by Kirsty

Kirsty — Wed, 08 Apr 2026 14:44:49 +0000

In reply to Jenny m. Ahhh thank you so much

Comment on We just deal with what comes our way by Kids

Kids — Wed, 08 Apr 2026 14:44:11 +0000

In reply to Marc. Ahhh thank you

Comment on We just deal with what comes our way by Jenny m

Jenny m — Mon, 23 Mar 2026 18:05:27 +0000

Thank you for sharing your story, what an amazing family you are and what wonderful support you give each other. Sending you all best wishes for the future x

Comment on It was all just normal to me by Wendy Brown

Wendy Brown — Fri, 06 Mar 2026 22:14:22 +0000

In reply to Graham Gordon. Hi Graham, it's lovely to hear from you. We hope you are well and happy? We often think about you. You were a fantastic, friendly, knowledgeable and reassuring support to our family while Beth was so very ill and we were going through such a traumatic time. Until we got to the Liver Unit at Birmingham and met you and the rest of the fabulous team, we were totally clueless about what Beth was going through and how best to help her. Everything seemed hopeless to us then but now, fortunately 31 years later we hope Beth's story might help others. Once again we thank you so much

Comment on Erin’s story by Wendy Brown

Wendy Brown — Tue, 24 Feb 2026 20:25:41 +0000

A lovely success story. Our daughter Beth Brown was also born with Biliary Atresia in 1994. It will be her 31st Liver transplant anniversary in May this year. Her story is on the CLDF website if you want to read it. It is amazing what they can do to help these babies.
I hope everything goes well for you all. Best wishes, Wendy x

Comment on Never worry about your future by Verna Mason

Verna Mason — Sun, 22 Feb 2026 13:50:34 +0000

Oh wow. I didn’t fully know your whole story Frankie. What an inspiring read. I cannot imagine how frightening it must have been for your parents. It’s a beautiful thing to know that your transplant has enabled you to become the lovely mother you are today. Also how hard it must have been for the donors parents. Although bittersweet and heartwarming at the same time to see you thrive. I am a donor and as we can see in your story just how important it is to make life matter by being a one and making a difference. Well done Frankie x

Comment on Never worry about your future by Jacqueline jones

Jacqueline jones — Sun, 22 Feb 2026 10:28:36 +0000

All our love always jacs andy and lee xxx you are truly an inspiration to anyone who like you has been through so much

Comment on British Paediatric Surveillance Unit Survey on Biliary Atresia – A Game Changer for Children’s Liver Disease Foundation? By Catherine Arkley by Susan Cassidy

Susan Cassidy — Wed, 18 Feb 2026 19:32:18 +0000

Hello, can I ask do you have knowledge of the number of children born with Biliary Atresia who had a Kasai Procedure (but with no need of subsequent transplant) remaining alive past the age of 40yrs ?

Comment on The second chance feeling by Carly

Carly — Sun, 08 Feb 2026 19:44:32 +0000

We are one week in to our daughters diagnosis and reading this was like reading our own story. They are so little to have this big thing to deal with

Comment on Our unique bond by Zoe Blackham

Zoe Blackham — Sun, 18 Jan 2026 09:10:54 +0000

Forever grateful to our donor family and the medical team and it’s lovely that CLDF still remain in touch with us. X