Family fun day raises £1200 to fight childhood liver disease

Just six months after receiving the shattering news that their baby daughter had a rare liver disease, a couple from St Helens have organised a family fun day and raised £1,200 for Children’s Liver Disease Foundation (CLDF).

Little Teighan Rae Whitfield, who was born in September, was just six weeks old when she was diagnosed with the rare and life-threatening condition, biliary atresia.

Teighan

“Our world was turned upside down,” admits mum Danielle who has three older children, Rhiannan, 12, Tiffanie, nine and Alfie, seven. “We had never heard of this condition and after firstly being admitted to our local hospital, suddenly me and my husband Scott had to travel with Teighan to Leeds General Infirmary for more tests and within three days, she had to have urgent major surgery. It was an anxious and heartbreaking time for the whole family, especially the other children who had to stay with grandparents while we were away for two weeks; they were so worried about their baby sister.

Teighan’s older siblings Tiffanie, Alfie and Rhiannan

“From the start, however, we received plenty of information from CLDF, who are also there with emotional support whenever we need it. And although Teighan is doing really well at the minute, there is no cure for childhood liver disease and I know that CLDF will continue to be there for us as a family. I wanted to give something back, so when we saw that Big Yellow Friday, their annual fundraising day, was taking place in March we thought it was a great opportunity to join in with a family fun day!”

Helped by family and friends, Danielle, Scott and their children put on the event at CETRA Community Centre in Haydock last weekend and received great support from their local community.

“We had a variety of stalls, with plenty of food and drink, games and tombolas, even a visit from a couple of Minions in keeping with the big and yellow theme!” says Danielle. “And we are just delighted to have raised so much money for a cause which means so much to us.”

Alison Taylor, Chief Executive of Children’s Liver Disease Foundation added: “CLDF is the only UK charity dedicated to fighting all childhood liver diseases, by providing information and emotional support, funds for research and a voice for all those affected. In order to do this however, we rely almost entirely on voluntary donations so we are delighted that Danielle and her family have joined in with Big Yellow Friday in such a fantastic way. This is a tremendous result and the funds they have raised will enable us to continue making a difference to children like Teighan around the UK.”

 

**ENDS**

Photo captions:

  1. Teighan Whitfield who inspired her family to put on a special fundraising event for Children’s Liver Disease Foundation
  2. Teighan’s older siblings (left to right Tiffanie, Alfie and Rhiannan)