A group of sixth formers form Castle Rushen High School in Castletown are planning to run 100 miles on Thursday and Friday this week to raise funds for Children’s Liver Disease Foundation (CLDF) in support of one of their classmates.
Seventeen year-old Faith Crook, who lives in Port St Mary, developed autoimmune hepatitis and suffered acute liver failure when she was just two years old.
“I was transferred to Birmingham Children’s Hospital for a super urgent liver transplant, which fortunately was a success after eight hours of surgery,” says Faith. “Since then, everything has always been up and down. Life is a round of hospital admissions, appointments, treatments and scans. But I’m forever grateful to be alive.
“I’ve lived a life like everyone else and, despite the odds, even passed my GCSEs. My family have received information and support from Children’s Liver Disease Foundation ever since I was diagnosed, and now they have been there for me too. Last week I attended a film making workshop which CLDF organised. It was great, not only to make a film telling my own story, but to be with other people my age who know what it’s like to live with a liver condition.
“I want every young person in my situation to have the support which I have received, which is why it is important to me to give something back to CLDF by joining in with Big Yellow Friday (March 1), their national fundraising and awareness day. I suggested the idea of a Big Yellow Run to my school friends and was delighted at their response!”
Around 35 sixth form pupils will cover the 100 mile distance on the school field or track during their free periods on Thursday and Friday. Having already smashed their £500 target, they now want to raise as much as they can for a charity which means so much to Faith.
“Over the last three years, I have had further problems with my health and I don’t know if I will be well enough to take part in the run” says Faith. “It does mean, however that I will really need the support of CLDF and I am just so pleased that my friends are doing this for me.”
Alison Taylor, Chief Executive of Children’s Liver Disease Foundation commented: “CLDF is the only UK charity dedicated to fighting all childhood liver diseases, by providing information and emotional support, funds for research and a voice for all those affected. In order to do this however, we rely almost entirely on voluntary donations which is why Big Yellow Friday is such an important day for us. We’re delighted that Faith has been inspired to fundraise for us and that she has received such an amazing response from her friends. We wish them all the best of luck for their Big Yellow Run”
You can support Faith and her friends in their Big Yellow Run by going to https://www.justgiving.com/fundraising/faith-crook.
For more information on CLDF visit childliverdisease.org.