Eight year-old twins, Sophie and Megan Tubman, are taking on an ambitious challenge this month – they plan to complete a marathon! During May, the sisters from Whitfield in Dover will walk, run, swim or cycle a marathon distance in order to raise funds for a charity which means a great deal to them, Children’s Liver Disease Foundation (CLDF).
The charity has been an important one to the family ever since Sophie was diagnosed with the rare liver disease, biliary atresia, when she was just a few weeks old.
“To be told that one of your new born babies has a disease you have never heard of, for which there is no cure, is a truly traumatic experience,” says the girls’ mum Louise. “CLDF were there for me with information about her condition and support for us as a family and I want that to be there for every family who has to go through this.”
By the time Sophie was three, her parents were told that a liver transplant was her only option. Fortunately, a donor liver was found in time and next month marks the fifth anniversary of her successful transplant surgery. The family agreed it was the perfect time to give something back with a fundraising challenge.
“When we found out about CLDF’s My May Marathon we thought it was a great idea as it’s something we can all do together,” said Louise. “We decide each day which form of exercise we will do for a mile or more. It’s a great way of encouraging us all to be more active, knowing we are fundraising for such a fantastic cause.”
The twins are embracing the challenge enthusiastically. “We wanted to do some exercise which is good for us” explains Sophie. “And we want to do it for CLDF because they have helped my whole family – my mum, dad, nanna and grandad – and I had a liver transplant.”
Megan adds: ”‘CLDF helped my sister and our family so if we raise some money we can help CLDF help other children and families”.
Alison Taylor, Chief Executive of Children’s Liver Disease Foundation commented: “CLDF is the only UK charity dedicated to fighting all childhood liver diseases, by providing information and emotional support, funds for research and a voice for all those affected. In order to do this however, we rely almost entirely on voluntary donations, so we are delighted to hear that the Tubmans are taking up the My May Marathon. We hope that they have great fun doing so!!”
You can support Sophie and Megan in their marathon challenge by going to https://mmm.everydayhero.com/uk/my-may-marathon-sophie-megan.