Cherish every minute Childhood liver disease is rare and therefore often difficult to diagnose. Here…
Children's Liver Disease FoundationSeptember 10, 2019
News Centre
CLDF’s press office works to raise the profile of the charity and childhood liver disease amongst the general public. Below you will find details of the latest CLDF news and all our recent press releases. If you would like general information on childhood liver disease or would like to speak to a family or young person who have been affected please contact Mairead, our PR & Communications Manager on 0121 212 6012 or email press@childliverdisease.org.
Click here to view our latest Liver Life magazine
Read our
Liver Life magazine
For the latest news, campaigns, research projects and features from Children’s Liver Disease Foundation. Click Here to sign up for CLDF updates and you’ll receive the next edition of Liver Life in the post or by email.
Read previous issues of Liver Life below: Summer 2018 Spring 2017 | Autumn 2016 | Spring 2016
Chloe Salusbury from Prenton stepped right out of her comfort zone this weekend when she…
Children's Liver Disease FoundationSeptember 10, 2019
Anthony McGuinness only started running this year but managed to complete the Great North Run…
Children's Liver Disease FoundationSeptember 10, 2019
Scotland Legislation to introduce a deemed consent or opt-out system of organ and tissue donation…
Children's Liver Disease FoundationSeptember 6, 2019
Joan Raxter from Hanbury is heading to Newcastle this weekend (September 8) to take part…
Children's Liver Disease FoundationSeptember 2, 2019
When it comes to fundraising very often the simplest ideas can be very effective –…
Children's Liver Disease FoundationSeptember 2, 2019
Keen cyclist, Kevin Harrison, is proud not only to have completed the 100 mile cycle…
Children's Liver Disease FoundationSeptember 2, 2019
Super swimmer James Jenkins is celebrating after scooping five medals at the British Transplant Games…
Children's Liver Disease FoundationAugust 17, 2019
Young people from around the UK joined us at Derby University last weekend for the…
Children's Liver Disease FoundationAugust 14, 2019
Read our Liver Life magazine for the latest news, campaigns, research projects and features from…
Children's Liver Disease FoundationAugust 5, 2019
A Huntingdon teenager who did a sky dive to raise funds for Children’s Liver Disease…
Children's Liver Disease FoundationAugust 1, 2019
Being told that your child has a rare liver disease is shattering news. But what…
Children's Liver Disease FoundationJuly 31, 2019
A paediatric nurse from West End in Woking is demonstrating her passion for children’s health…
Children's Liver Disease FoundationJuly 30, 2019
Moving on – The Journey from Paediatric to Adult Services Research insights into transition to…
Children's Liver Disease FoundationJuly 30, 2019
Little Ada Butterfield knows more about fundraising than most toddlers. Since she was born four…
Children's Liver Disease FoundationJuly 24, 2019
A 17 year- old girl from Huntingdon will be taking to the skies next Sunday…
Children's Liver Disease FoundationJuly 24, 2019
Ros Howell from Wrea Green decided to turn a milestone birthday into a fantastic fundraiser…
Children's Liver Disease FoundationJuly 23, 2019
Recently, my life has revolved around a succession of airport hubs, hospitality lounges and the…
Children's Liver Disease FoundationJuly 19, 2019
CLDF has welcomed today’s news from NHS Blood and Transplant that last year, 1,600 people…
Children's Liver Disease FoundationJuly 19, 2019
CLDF has launched two new information leaflets on Hepatitis B – one aimed at teenagers…
Children's Liver Disease FoundationJuly 18, 2019
Dr Jake Mann: Identification of biomarkers in paediatric fatty liver disease (Measuring blood fats for…
Children's Liver Disease FoundationJuly 18, 2019
It’s hard to believe sometimes but the picnic season really is upon us! We’re encouraging…
Children's Liver Disease FoundationJune 19, 2019
Research funded by CLDF has resulted in a blood test which could become clinical practice…
Children's Liver Disease FoundationJune 18, 2019
We’re delighted to bring you the story of Louise who was born with biliary atresia…
Children's Liver Disease FoundationJune 18, 2019
CLDF has expressed concern at the Government announcement that public health budgets should remain under…
Children's Liver Disease FoundationJune 13, 2019
Gina Woods from Chertsey added a real splash of colour to her weekend by taking…
Children's Liver Disease FoundationJune 10, 2019
‘You help us feel less isolated’ - Jayden’s story. Jayden, who is eight and comes…
Children's Liver Disease FoundationJune 3, 2019
We know how important research into childhood liver disease is to our families which is…
Children's Liver Disease FoundationMay 28, 2019
With just a week to go a handful of tickets are still available for the…
Children's Liver Disease FoundationMay 24, 2019
Talk, Tell, Transform 2019 success! Our Head of Support, Michelle Wilkins, attended her first TTT…
Children's Liver Disease FoundationMay 24, 2019
Starting or changing school is a big event for any child but when that child…
Children's Liver Disease FoundationMay 23, 2019
Staff from Aspire Housing in Newcastle under Lyme completed a Snowdon climb on Friday (May…
Children's Liver Disease FoundationMay 21, 2019
A mum of three from Lisburn will be fulfilling a lifelong ambition next Sunday (May…
Hannah BransonMay 16, 2019
Congenital portosystemic shunts and the development of liver tumours: characterisation of the genetic and histopathologic…
Children's Liver Disease FoundationMay 14, 2019
Why I love fundraising by Lisa We’re lucky at CLDF to have so many supporters…
Children's Liver Disease FoundationMay 9, 2019
Teachers often like to set an example to their pupils but, when it comes to…
Hannah BransonMay 7, 2019
CLDF backs call for increased investment in public health CLDF is one of a number…
Hannah BransonMay 7, 2019
We are very grateful to 14 year old Hannah for sharing her brilliant and moving…
Hannah BransonMay 3, 2019
Lauren Taylor of Teston will be running the London Marathon for the first time next…
Children's Liver Disease FoundationMay 2, 2019
A mum from Berwick Hills is organising a fundraising night to support two organisations which…
Hannah BransonMay 1, 2019
Congratulations to 17 year old Madeline from Ipswich who, despite having had a tough two…
Hannah BransonApril 25, 2019
Danny Adams from Upminster will be running his first London Marathon next weekend (April 28).…
Hannah BransonApril 23, 2019
Sandra Ison and her 14 year-old son Ben will certainly have earned their Easter eggs…
Hannah BransonApril 23, 2019
Matt Bates from Ockbrook, Derbyshire, will be running his first London Marathon next weekend (April…
Hannah BransonApril 23, 2019
Katie Flatters from Coppenhall, Staffordshire, will be fulfilling a lifelong ambition next Sunday (April 28)…
Hannah BransonApril 23, 2019
Like many mums, Amanda Wallace from Mosborough in Sheffield, leads a very busy life. As…
Hannah BransonApril 14, 2019
When it comes to celebrating a Golden Wedding anniversary, many couples like to do something…
Hannah BransonApril 14, 2019
Jordan Walsh from Gosforth, Newcastle will be getting the Easter holidays off to an adrenaline-fuelled…
Hannah BransonApril 11, 2019
Today is #NationalSiblingsDay! In 2018 Rare Disease UK asked children, young people and siblings affected…
Hannah BransonApril 10, 2019
Following on from last year’s event, CLDF had yet another successful Scotland Family Weekend in…
Hannah BransonApril 4, 2019
Running for George – Danny Prepares For First Marathon Danny Adams from Upminster will be…
Children's Liver Disease FoundationApril 2, 2019
We’re delighted to announce that the CLDF Chefs’ Gala Dinner which took place at the…
Hannah BransonApril 2, 2019
A brother and sister from Alderminster have completed their first half marathon and raised much…
Hannah BransonApril 1, 2019
The cost of prescriptions increases to £9 today and many of our young people feel…
Hannah BransonApril 1, 2019
A Solihull volunteer has been given a special award for 25 years’ service to a…
Hannah BransonMarch 27, 2019
The First Milltown Company of the Boys’ Brigade have raised £1300 for Children’s Liver Disease…
Hannah BransonMarch 27, 2019
Five year old Imogen, who has inspired the fundraising event. Four mums from Neston are…
Hannah BransonMarch 27, 2019
Nominations open! Are you, or do you know someone, aged 6-16 who is a medical…
Hannah BransonMarch 26, 2019
CLDF is echoing calls from the Local Government Association to reverse the recent public health…
Hannah BransonMarch 26, 2019
Patient and Public Involvement “Do not wait for someone to come and speak for you. …
Children's Liver Disease FoundationMarch 20, 2019
Thirteen year old Melissa took part in CLDF Breakaway last year and had a great…
Hannah BransonMarch 20, 2019
What an amazing evening we had at the Chefs’ Gala Dinner last night - a…
Hannah BransonMarch 19, 2019
Two friends from West Lothian are embarking on a fundraising mission with a difference next…
Hannah BransonMarch 19, 2019
On a recent visit to Birmingham Children’s Hospital, Louise from our support team was thrilled…
Hannah BransonMarch 12, 2019
Sean and Sophie’s four-year-old-daughter, Annie was born with biliary atresia. “Annie’s bile ducts were damaged…
Hannah BransonMarch 12, 2019
The Children’s Liver Disease Foundation organises events around the country for families and patients. This…
Hannah BransonMarch 12, 2019
Thank you to all our young people who attended Talk, Tell, Transform last month. Each…
Hannah BransonMarch 7, 2019
When sixteen year old Michael became ill in October 2017 his local hospital, the Royal…
Hannah BransonMarch 6, 2019
Stuart Wainwright from Leavenheath will be taking on the Colchester Half Marathon on March 24…
Hannah BransonMarch 5, 2019
The annual Isle of Wight Pickle Wars, which took place at the Woodvale Hotel in…
Hannah BransonMarch 1, 2019
We’re very grateful to Isobel for this truly honest account of how having a child…
Hannah BransonFebruary 27, 2019
A group of sixth formers form Castle Rushen High School in Castletown are planning to…
Hannah BransonFebruary 27, 2019
Birmingham businesses had the opportunity to find out why they should be turning the city…
Hannah BransonFebruary 27, 2019
Spring is on the way and the UK will certainly turn a sunshiny shade of…
Hannah BransonFebruary 27, 2019
We certainly brought the excitement of the circus with us when we hosted our Greatest…
Hannah BransonFebruary 12, 2019
With preparations in full swing for our biennial fundraising event, the Chefs’ Gala Dinner, we…
Hannah BransonFebruary 11, 2019
Your background and research interests I am Mark Davenport, one of the original consultant surgeons…
Hannah BransonFebruary 5, 2019
Food lovers are being offered the chance to join in a unique evening of fabulous…
Hannah BransonFebruary 5, 2019
Birmingham businesses will be able to find out why they should be joining in with…
Hannah BransonFebruary 5, 2019
Millie shares her experience on Talk, Tell, Transform (TTT), telling us how attending helped her,…
Hannah BransonJanuary 29, 2019
We welcome the news that a new system for storing livers before transplant has been…
Hannah BransonJanuary 22, 2019
With just eight weeks to go, preparations are well underway for the Chefs’ Gala Dinner,…
Hannah BransonJanuary 22, 2019
When six year old Faizah was just a few weeks old, doctors told her parents…
Hannah BransonJanuary 9, 2019
Happy New Year to all our families and young people. It was lovely to return…
Hannah BransonJanuary 8, 2019
We’re delighted to welcome Kate Conroy to CLDF as our Scotland Support Officer. Kate will…
Hannah BransonJanuary 2, 2019
An imaginative eight year-old boy from Birmingham has turned his family’s experience with a serious…
Hannah BransonJanuary 2, 2019
Ben Fletcher from Twickenham has not had his hair cut for three years. This Christmas,…
Hannah BransonDecember 6, 2018
Did you know that if your child is aged six months or over and has…
Hannah BransonDecember 5, 2018
When Ethan was born in March 2014 he was a happy and healthy baby. It…
Hannah BransonDecember 4, 2018
Ollie was just a couple of days old when doctors at hospital in Belfast told…
Hannah BransonDecember 4, 2018
Jemima and Adebowale’s youngest child, Halima, was born on June 8th 2017. Eight weeks later…
Hannah BransonDecember 4, 2018
Eight year old Harrison was born with the rare genetic condition, autosomal recessive polycystic kidney…
Hannah BransonDecember 4, 2018
The Jawwad family’s life was turned upside down in August 2017 when their daughter Maham,…
Hannah BransonDecember 4, 2018
York Family Day 2019 was a great success! Thank you to all those who attended…
Hannah BransonNovember 28, 2018
A weightlifting competition with a difference is taking place in Alfreton this weekend (Saturday December…
Hannah BransonNovember 28, 2018
As the Scottish Parliament considers a move towards an opt-out system, Kirstin Mc llvaney, who…
Hannah BransonNovember 21, 2018
Thank you West Ham for giving one of our amazing young people a day to…
Hannah BransonNovember 19, 2018
A group of boot camp regulars will be working up a sweat for very different…
Hannah BransonNovember 15, 2018
A Birmingham charity is marking National Trustees Week by appealing for people from the local…
Hannah BransonNovember 15, 2018
A student who was diagnosed with the incurable condition, auto-immune liver disease, two years ago,…
Hannah BransonNovember 14, 2018
We at CLDF are delighted to welcome the launch of B+, a streetwear clothing brand…
Hannah BransonNovember 12, 2018
CLDF has say on potential new Scottish legislation The Human Tissue (Authorisation) (Scotland) Bill was…
Hannah BransonNovember 8, 2018
A nurse from Stourport, who was born with a rare liver disease and received a…
Hannah BransonNovember 8, 2018
Clare Frenay from Elmdon has never let the fact that she was born with a…
Hannah BransonNovember 8, 2018
European Reference Networks (ERNs) connect patients, clinicians and researchers across Europe. They allow knowledge and…
Hannah BransonNovember 8, 2018
Naomi Richardson Second year PhD student University of Birmingham, Institute of Immunology and Immunotherapy What…
Hannah BransonNovember 8, 2018
Why not get the family involved in a local Santa run this festive season and…
Hannah BransonNovember 8, 2018
Gary Hammond from Darlington made the trip down to London at the weekend (October14) to…
Hannah BransonOctober 23, 2018
CLDF is concerned at statitsics announced at last week’s Community Practitioners and Health Visitors Association…
Hannah BransonOctober 22, 2018
CLDF has joined forces with the British Society of Paediatric Gastroenterology Hepatology and Nutrition (BSPGHAN)…
Hannah BransonOctober 22, 2018
CLDF is concerned to see that the latest figures from the National Childhood Measurement Programme…
Hannah BransonOctober 17, 2018
For families affected by childhood liver disease, medication becomes part of the daily routine for…
Hannah BransonOctober 17, 2018
As a family affected by childhood liver disease, it is likely that at some stage…
Hannah BransonOctober 17, 2018
Children who are affected with childhood liver disease, are often faced with having regular blood…
Hannah BransonOctober 17, 2018
One of our lovely families has taken a step further to commemorate their daughter’s liver…
Hannah BransonOctober 16, 2018
In 2015, I wrote a blog about my experience of being at university with a…
Hannah BransonOctober 10, 2018
We were delighted to welcome 180 guests to our National Conference at the weekend (October…
Hannah BransonOctober 9, 2018
Emergency services in the north west will be coming together for a great cause on…
Hannah BransonOctober 3, 2018
We are delighted to report that the story book introduced by CLDF to explain the…
Hannah BransonSeptember 26, 2018
In his day job as a cook at the Boathouse Bistro at Gosport Marina, Simon…
Hannah BransonSeptember 20, 2018
Stephanie Cawthorne will be fulfilling a long-held ambition on November 1 when she heads to…
Hannah BransonSeptember 6, 2018
Zak Durrani, who currently lives in Ingleby Barwick, will be fulfilling a long held ambition…
Hannah BransonSeptember 3, 2018
A 13 year old girl from Bargoed in Caerphilly who was born with a rare…
Hannah BransonJuly 30, 2018
Scottish families whose children have liver disease got together last weekend at a special event…
Hannah BransonJuly 30, 2018
We love to share our young people’s stories on our website and we know how…
Hannah BransonJuly 25, 2018
CLDF is now taking applications for any of those who are filling in Drop-Out places…
Hannah BransonJuly 24, 2018
Big hearted staff at Domino’s in Garforth showed that they are more than just great…
Hannah BransonJuly 9, 2018
Tom Brading from Gosport is busy training for a 900 mile cycle ride. Next month…
Hannah BransonJuly 5, 2018
A mother of two from Cheltenham is planning a sky dive to raise funds for…
Hannah BransonJune 26, 2018
Going off to primary school is a major milestone for any child. When Grace Kelly…
Hannah BransonJune 26, 2018
Angela Stewart from Westerwood is no stranger to running. She has completed several marathons over…
Hannah BransonJune 19, 2018
May was a marathon month for 12-year-old Troy Parfitt from Corsham. He and his best…
Hannah BransonJune 14, 2018
Midlands businesses will have the opportunity to learn about the work of a national charity…
Hannah BransonJune 13, 2018
A grandmother from Witney is planning to celebrate her 60th birthday by cycling from London…
Hannah BransonJune 7, 2018
A 23 year-old man from Stoke Ash is looking forward to taking up his place…
Hannah BransonJune 5, 2018
Carmelina Alongi and Daimon Wellington from Virginia Water did their first running event last month…
Hannah BransonMay 30, 2018
Eight year-old twins, Sophie and Megan Tubman, are taking on an ambitious challenge this month…
Hannah BransonMay 17, 2018
Do you have a few hours to spare to help a Midlands children’s charity? If…
Hannah BransonMay 11, 2018
Jonathan and Danielle Roscoe from Norwood, Southport will be trekking up Snowdon next weekend (May…
Hannah BransonMay 11, 2018
A fundraising ball to commemorate what would have been the 18th birthday of Millie Watts…
Hannah BransonMay 10, 2018
Birmingham based national charity, Children’s Liver Disease Foundation (CLDF) is delighted to be a chosen…
Hannah BransonMay 1, 2018
Thank you to all the families who joined us at our recent Northern Ireland family…
Hannah BransonApril 18, 2018
Laura Bedward from Helmshore in Rossendale, is preparing to run the London Marathon next weekend,…
Hannah BransonApril 17, 2018
Pupils at Hall Green Primary School in West Bromwich had a ‘Big Yellow Friday’ before…
Hannah BransonApril 16, 2018
Tom Bagley is excited to be taking part in next weekend’s London Marathon to raise…
Hannah BransonApril 13, 2018
Jon Else from Altrincham is heading to London next weekend to take part in the…
Hannah BransonApril 12, 2018
Graham Keith will be pounding the streets of London with thousands of others in the…
Hannah BransonApril 12, 2018
Olly Baker from Longfield, will be taking part in the London Marathon. He has a…
Hannah BransonApril 9, 2018
Children’s Liver Disease Foundation are excited to launch our new-look T-Shirts with a design by…
Hannah BransonApril 4, 2018
A highly competitive Pickle Wars not only saw event organiser, Terry Ashdown crowned 'Pickle King'…
Hannah BransonApril 3, 2018
The pupils of Mayals Primary School's Enterprise Group in West Cross, Swansea, held a Big…
Hannah BransonMarch 26, 2018
Big Yellow Friday is Children's Liver Disease Foundation's biggest fundraising day of the year, as…
Hannah BransonMarch 26, 2018
Scorpios Salon and Barbers in North Baddesley held a yellow themed coffee morning for CLDF…
Hannah BransonMarch 23, 2018
Staff at BP stores in Kent, Essex, Sussex, Hampshire, London and Brighton areas have raised…
Hannah BransonMarch 23, 2018
Children's Liver Disease Foundation has awarded grants to three new research projects
Hannah BransonMarch 22, 2018
Thank you to all the families who joined us at our recent Cardiff family day…
Hannah BransonMarch 20, 2018
Jemima and Adebowale's youngest child, Halima, was born with the rare liver disease, biliary atresia.…
Hannah BransonMarch 13, 2018
Many people would balk at the idea of doing a skydive on Friday 13th but…
Hannah BransonMarch 12, 2018
Just six months after receiving the shattering news that their baby daughter had a rare…
Hannah BransonMarch 12, 2018
Fourteen BP stores throughout Gloucestershire, Swindon, Bristol and Wales have spent January fundraising for Children's…
Hannah BransonMarch 8, 2018
Grace had her long locks cut at school as part of their fundraising activities for…
Hannah BransonMarch 6, 2018
The weather may have brought most of the country to a standstill on Friday but…
Hannah BransonMarch 5, 2018
Thomas was born in March 2017 and was just eight days old when his GP…
Hannah BransonMarch 1, 2018
Grace is going above and beyond this Big Yellow Friday, cutting her long hair in…
Hannah BransonFebruary 27, 2018
Although we are promised wintry weather this week, the UK will turn a sunshiny shade…
Hannah BransonFebruary 26, 2018
A line up of first class comic talent is on offer at Altrincham's Cinnamon Club…
Hannah BransonFebruary 26, 2018
Not many grooms would choose to cycle 240 miles to their wedding venue but that…
Hannah BransonFebruary 20, 2018
A new story book, designed to help children who are facing a liver transplant, has…
Hannah BransonFebruary 15, 2018
Imogen was a VIP guest at Leoni UK last week when she accepted a cheque…
Hannah BransonFebruary 13, 2018
When Hannah did the Great North Run in 2016, it certainly gave her the running…
Hannah BransonFebruary 8, 2018
Children's Liver Disease Foundation has welcomed the launch of the Government's consultation into a proposed…
Hannah BransonFebruary 1, 2018
Children with liver disease commonly suffer from dental problems
Hannah BransonFebruary 1, 2018
Mum Rachel shared her son James’ story about fundraising for Big Yellow Friday in school
Hannah BransonFebruary 1, 2018
Our son underwent a lifesaving operation, a liver transplant which wouldn't have been possible without…
Hannah BransonJanuary 31, 2018
A mum from Poole, whose son was given a life-saving liver transplant two years ago,…
Hannah BransonJanuary 31, 2018
Stephanie Cawthorne will be fulfilling a long held ambition in November when she heads to…
Hannah BransonJanuary 30, 2018
Being affected by childhood liver disease, having bloods taken is key for many children. However,…
Hannah BransonJanuary 26, 2018
Pickling onions are flying off the shelves in the Isle of Wight as competitors prepare…
Alan HigginsJanuary 8, 2018
New Year’s Day will see the continuation of a Broadstairs tradition, with over 100 swimmers…
Alan HigginsDecember 22, 2017
A Portadown couple are looking forward to a very special Christmas now that their youngest…
Alan HigginsDecember 18, 2017
The Aberdeen branch of the Royal Scottish Country Dance Society has raised £300 for Children’s…
Alan HigginsDecember 15, 2017
The organisers of the 2018 British Transplant Games, which will be held in Birmingham, are…
Alan HigginsDecember 8, 2017
Birmingham based Children’s Liver Disease Foundation (CLDF) has received an early Christmas gift from bakergoodchild.…
Alan HigginsDecember 8, 2017
CLDF is highly concerned to see the today’s news report showing a stark increase in…
Alan HigginsDecember 7, 2017
Calling all young artists! The CLDF T-Shirt, which has been worn by thousands of fundraisers…
Alan HigginsDecember 4, 2017
We are delighted to report that Professor John Iredale, Pro Vice-Chancellor for Health at the…
Alan HigginsNovember 30, 2017
The fourth report of the Lancet Standing Commission on Liver Disease in the UK is…
Alan HigginsNovember 30, 2017
A Christmas bingo night in Parson Drove, Wisbech, is set to provide an evening of…
Alan HigginsNovember 27, 2017
As a liver family it is likely that at some stage you will have a…
Alan HigginsNovember 27, 2017
A Birmingham based national charity is appealing to businesses to do something yellow on Friday…
Alan HigginsNovember 22, 2017
Nine year old Luis McKibbin from Buckshaw Village near Chorley has spent a weekend of…
Alan HigginsNovember 22, 2017
You might know that Children’s Liver Disease Foundation’s annual fundraising day is coming up! Big…
Alan HigginsOctober 24, 2017
On Saturday 14th and Sunday 15th October, CLDF was joined by 13 families at PGL…
Alan HigginsOctober 18, 2017
Being affected by childhood liver disease, medication is just part of the daily routine for…
Alan HigginsOctober 17, 2017
Massive congratulations to midwife Shelly Gascgoine who was a finalist at The Sun’s Health Hero…
Alan HigginsOctober 16, 2017
On Wednesday 4 October 2017 the Prime Minister announced plans to change the organ donation…
Alan HigginsOctober 5, 2017
CLDF has contributed to a major report published today (September 14) by Public Health England…
Alan HigginsSeptember 14, 2017
To help raise awareness in Organ Donation Week 2017, Kirstin kindly shared her daughter's story...…
Alan HigginsSeptember 4, 2017
On Saturday 19th August, eight children and their parents headed into the Oxfordshire woods with…
Alan HigginsAugust 22, 2017
All babies born from 1st August 2017 across the UK will have protection against hepatitis…
Alan HigginsAugust 9, 2017
Wow! We had an incredible time at the very first CLDF Weekender this weekend! 33…
Alan HigginsAugust 8, 2017
For Melissa it was ‘hair today, gone tomorrow’ after she hit her fundraising target! She…
Alan HigginsJuly 27, 2017
As we mark World Hepatitis Day this Friday, 20 year old Aidan shares her experience…
Alan HigginsJuly 26, 2017
Later this month (27-30 July) more than 2,500 people whose lives have been touched by…
Alan HigginsJuly 18, 2017
The Information Standard It’s only natural for parents who find out their child has a…
Alan HigginsJuly 4, 2017
On Saturday 20th and Sunday 21st May, CLDF headed to Perthshire. We were joined by…
Alan HigginsMay 25, 2017
In our latest blog Dr Jake Mann tells us about a new study which is…
Alan HigginsMay 12, 2017
Some of my earliest memories when attending hospital were when I used to visit Prof…
Alan HigginsMay 11, 2017
Jacquie is CLDF’s Families Officer, here to provide empathetic support, information and a listening ear...…
Alan HigginsApril 4, 2017
Thank you to all the families who joined us at our recent Northern Ireland family…
Alan HigginsMarch 17, 2017
CLDF visited Hertfordshire on Saturday 4th February for a family event at Bedwell Community Centre…
Alan HigginsFebruary 9, 2017
For eleven year old Melissa, who has the rare liver condition, biliary hyperplasia, the first…
Alan HigginsJanuary 24, 2017
When we were told that our son, Hugo had biliary atresia, it felt like the…
Alan HigginsJanuary 24, 2017
The support CLDF provided in the first few weeks of diagnosis was priceless to us.…
Alan HigginsJanuary 24, 2017
I was nine years old when I was diagnosed with Budd Chiari syndrome, a rare…
Alan HigginsJanuary 24, 2017
Alex knew that something was wrong with her newborn baby. Encouraged by her best friend…
Alan HigginsJanuary 24, 2017
My youngest munchkin was born in October 2012, Enola, but normally known as Eni or…
Alan HigginsJanuary 24, 2011
Cherish every minute Childhood liver disease is rare and therefore often difficult to diagnose. Here…
Children's Liver Disease FoundationSeptember 10, 2019
Amongst the 50,000 runners taking part in Sunday’s Great North Run were a Nottinghamshire family…
Children's Liver Disease FoundationSeptember 10, 2019
Chloe Salusbury from Prenton stepped right out of her comfort zone this weekend when she…
Children's Liver Disease FoundationSeptember 10, 2019
Anthony McGuinness only started running this year but managed to complete the Great North Run…
Children's Liver Disease FoundationSeptember 10, 2019
Scotland Legislation to introduce a deemed consent or opt-out system of organ and tissue donation…
Children's Liver Disease FoundationSeptember 6, 2019
Joan Raxter from Hanbury is heading to Newcastle this weekend (September 8) to take part…
Children's Liver Disease FoundationSeptember 2, 2019
When it comes to fundraising very often the simplest ideas can be very effective –…
Children's Liver Disease FoundationSeptember 2, 2019
Keen cyclist, Kevin Harrison, is proud not only to have completed the 100 mile cycle…
Children's Liver Disease FoundationSeptember 2, 2019
Super swimmer James Jenkins is celebrating after scooping five medals at the British Transplant Games…
Children's Liver Disease FoundationAugust 17, 2019
Young people from around the UK joined us at Derby University last weekend for the…
Children's Liver Disease FoundationAugust 14, 2019
Read our Liver Life magazine for the latest news, campaigns, research projects and features from…
Children's Liver Disease FoundationAugust 5, 2019
A Huntingdon teenager who did a sky dive to raise funds for Children’s Liver Disease…
Children's Liver Disease FoundationAugust 1, 2019
Being told that your child has a rare liver disease is shattering news. But what…
Children's Liver Disease FoundationJuly 31, 2019
A paediatric nurse from West End in Woking is demonstrating her passion for children’s health…
Children's Liver Disease FoundationJuly 30, 2019
Moving on – The Journey from Paediatric to Adult Services Research insights into transition to…
Children's Liver Disease FoundationJuly 30, 2019
Little Ada Butterfield knows more about fundraising than most toddlers. Since she was born four…
Children's Liver Disease FoundationJuly 24, 2019
A 17 year- old girl from Huntingdon will be taking to the skies next Sunday…
Children's Liver Disease FoundationJuly 24, 2019
Ros Howell from Wrea Green decided to turn a milestone birthday into a fantastic fundraiser…
Children's Liver Disease FoundationJuly 23, 2019
Recently, my life has revolved around a succession of airport hubs, hospitality lounges and the…
Children's Liver Disease FoundationJuly 19, 2019
CLDF has welcomed today’s news from NHS Blood and Transplant that last year, 1,600 people…
Children's Liver Disease FoundationJuly 19, 2019
CLDF has launched two new information leaflets on Hepatitis B – one aimed at teenagers…
Children's Liver Disease FoundationJuly 18, 2019
Dr Jake Mann: Identification of biomarkers in paediatric fatty liver disease (Measuring blood fats for…
Children's Liver Disease FoundationJuly 18, 2019
It’s hard to believe sometimes but the picnic season really is upon us! We’re encouraging…
Children's Liver Disease FoundationJune 19, 2019
Research funded by CLDF has resulted in a blood test which could become clinical practice…
Children's Liver Disease FoundationJune 18, 2019
We’re delighted to bring you the story of Louise who was born with biliary atresia…
Children's Liver Disease FoundationJune 18, 2019
CLDF has expressed concern at the Government announcement that public health budgets should remain under…
Children's Liver Disease FoundationJune 13, 2019
Gina Woods from Chertsey added a real splash of colour to her weekend by taking…
Children's Liver Disease FoundationJune 10, 2019
‘You help us feel less isolated’ - Jayden’s story. Jayden, who is eight and comes…
Children's Liver Disease FoundationJune 3, 2019
We know how important research into childhood liver disease is to our families which is…
Children's Liver Disease FoundationMay 28, 2019
With just a week to go a handful of tickets are still available for the…
Children's Liver Disease FoundationMay 24, 2019
Talk, Tell, Transform 2019 success! Our Head of Support, Michelle Wilkins, attended her first TTT…
Children's Liver Disease FoundationMay 24, 2019
Starting or changing school is a big event for any child but when that child…
Children's Liver Disease FoundationMay 23, 2019
Staff from Aspire Housing in Newcastle under Lyme completed a Snowdon climb on Friday (May…
Children's Liver Disease FoundationMay 21, 2019
A mum of three from Lisburn will be fulfilling a lifelong ambition next Sunday (May…
Hannah BransonMay 16, 2019
Congenital portosystemic shunts and the development of liver tumours: characterisation of the genetic and histopathologic…
Children's Liver Disease FoundationMay 14, 2019
Why I love fundraising by Lisa We’re lucky at CLDF to have so many supporters…
Children's Liver Disease FoundationMay 9, 2019
Teachers often like to set an example to their pupils but, when it comes to…
Hannah BransonMay 7, 2019
CLDF backs call for increased investment in public health CLDF is one of a number…
Hannah BransonMay 7, 2019
We are very grateful to 14 year old Hannah for sharing her brilliant and moving…
Hannah BransonMay 3, 2019
Lauren Taylor of Teston will be running the London Marathon for the first time next…
Children's Liver Disease FoundationMay 2, 2019
A mum from Berwick Hills is organising a fundraising night to support two organisations which…
Hannah BransonMay 1, 2019
Congratulations to 17 year old Madeline from Ipswich who, despite having had a tough two…
Hannah BransonApril 25, 2019
Danny Adams from Upminster will be running his first London Marathon next weekend (April 28).…
Hannah BransonApril 23, 2019
Sandra Ison and her 14 year-old son Ben will certainly have earned their Easter eggs…
Hannah BransonApril 23, 2019
Matt Bates from Ockbrook, Derbyshire, will be running his first London Marathon next weekend (April…
Hannah BransonApril 23, 2019
Katie Flatters from Coppenhall, Staffordshire, will be fulfilling a lifelong ambition next Sunday (April 28)…
Hannah BransonApril 23, 2019
Like many mums, Amanda Wallace from Mosborough in Sheffield, leads a very busy life. As…
Hannah BransonApril 14, 2019
When it comes to celebrating a Golden Wedding anniversary, many couples like to do something…
Hannah BransonApril 14, 2019
Jordan Walsh from Gosforth, Newcastle will be getting the Easter holidays off to an adrenaline-fuelled…
Hannah BransonApril 11, 2019
Today is #NationalSiblingsDay! In 2018 Rare Disease UK asked children, young people and siblings affected…
Hannah BransonApril 10, 2019
Following on from last year’s event, CLDF had yet another successful Scotland Family Weekend in…
Hannah BransonApril 4, 2019
Running for George – Danny Prepares For First Marathon Danny Adams from Upminster will be…
Children's Liver Disease FoundationApril 2, 2019
We’re delighted to announce that the CLDF Chefs’ Gala Dinner which took place at the…
Hannah BransonApril 2, 2019
A brother and sister from Alderminster have completed their first half marathon and raised much…
Hannah BransonApril 1, 2019
The cost of prescriptions increases to £9 today and many of our young people feel…
Hannah BransonApril 1, 2019
A Solihull volunteer has been given a special award for 25 years’ service to a…
Hannah BransonMarch 27, 2019
The First Milltown Company of the Boys’ Brigade have raised £1300 for Children’s Liver Disease…
Hannah BransonMarch 27, 2019
Five year old Imogen, who has inspired the fundraising event. Four mums from Neston are…
Hannah BransonMarch 27, 2019
Nominations open! Are you, or do you know someone, aged 6-16 who is a medical…
Hannah BransonMarch 26, 2019
CLDF is echoing calls from the Local Government Association to reverse the recent public health…
Hannah BransonMarch 26, 2019
Patient and Public Involvement “Do not wait for someone to come and speak for you. …
Children's Liver Disease FoundationMarch 20, 2019
Thirteen year old Melissa took part in CLDF Breakaway last year and had a great…
Hannah BransonMarch 20, 2019
What an amazing evening we had at the Chefs’ Gala Dinner last night - a…
Hannah BransonMarch 19, 2019
Two friends from West Lothian are embarking on a fundraising mission with a difference next…
Hannah BransonMarch 19, 2019
On a recent visit to Birmingham Children’s Hospital, Louise from our support team was thrilled…
Hannah BransonMarch 12, 2019
Sean and Sophie’s four-year-old-daughter, Annie was born with biliary atresia. “Annie’s bile ducts were damaged…
Hannah BransonMarch 12, 2019
The Children’s Liver Disease Foundation organises events around the country for families and patients. This…
Hannah BransonMarch 12, 2019
Thank you to all our young people who attended Talk, Tell, Transform last month. Each…
Hannah BransonMarch 7, 2019
When sixteen year old Michael became ill in October 2017 his local hospital, the Royal…
Hannah BransonMarch 6, 2019
Stuart Wainwright from Leavenheath will be taking on the Colchester Half Marathon on March 24…
Hannah BransonMarch 5, 2019
The annual Isle of Wight Pickle Wars, which took place at the Woodvale Hotel in…
Hannah BransonMarch 1, 2019
We’re very grateful to Isobel for this truly honest account of how having a child…
Hannah BransonFebruary 27, 2019
A group of sixth formers form Castle Rushen High School in Castletown are planning to…
Hannah BransonFebruary 27, 2019
Birmingham businesses had the opportunity to find out why they should be turning the city…
Hannah BransonFebruary 27, 2019
Spring is on the way and the UK will certainly turn a sunshiny shade of…
Hannah BransonFebruary 27, 2019
We certainly brought the excitement of the circus with us when we hosted our Greatest…
Hannah BransonFebruary 12, 2019
With preparations in full swing for our biennial fundraising event, the Chefs’ Gala Dinner, we…
Hannah BransonFebruary 11, 2019
Your background and research interests I am Mark Davenport, one of the original consultant surgeons…
Hannah BransonFebruary 5, 2019
Food lovers are being offered the chance to join in a unique evening of fabulous…
Hannah BransonFebruary 5, 2019
Birmingham businesses will be able to find out why they should be joining in with…
Hannah BransonFebruary 5, 2019
Millie shares her experience on Talk, Tell, Transform (TTT), telling us how attending helped her,…
Hannah BransonJanuary 29, 2019
We welcome the news that a new system for storing livers before transplant has been…
Hannah BransonJanuary 22, 2019
With just eight weeks to go, preparations are well underway for the Chefs’ Gala Dinner,…
Hannah BransonJanuary 22, 2019
When six year old Faizah was just a few weeks old, doctors told her parents…
Hannah BransonJanuary 9, 2019
Happy New Year to all our families and young people. It was lovely to return…
Hannah BransonJanuary 8, 2019
We’re delighted to welcome Kate Conroy to CLDF as our Scotland Support Officer. Kate will…
Hannah BransonJanuary 2, 2019
An imaginative eight year-old boy from Birmingham has turned his family’s experience with a serious…
Hannah BransonJanuary 2, 2019
Ben Fletcher from Twickenham has not had his hair cut for three years. This Christmas,…
Hannah BransonDecember 6, 2018
Did you know that if your child is aged six months or over and has…
Hannah BransonDecember 5, 2018
When Ethan was born in March 2014 he was a happy and healthy baby. It…
Hannah BransonDecember 4, 2018
Ollie was just a couple of days old when doctors at hospital in Belfast told…
Hannah BransonDecember 4, 2018
Jemima and Adebowale’s youngest child, Halima, was born on June 8th 2017. Eight weeks later…
Hannah BransonDecember 4, 2018
Eight year old Harrison was born with the rare genetic condition, autosomal recessive polycystic kidney…
Hannah BransonDecember 4, 2018
The Jawwad family’s life was turned upside down in August 2017 when their daughter Maham,…
Hannah BransonDecember 4, 2018
York Family Day 2019 was a great success! Thank you to all those who attended…
Hannah BransonNovember 28, 2018
A weightlifting competition with a difference is taking place in Alfreton this weekend (Saturday December…
Hannah BransonNovember 28, 2018
As the Scottish Parliament considers a move towards an opt-out system, Kirstin Mc llvaney, who…
Hannah BransonNovember 21, 2018
Thank you West Ham for giving one of our amazing young people a day to…
Hannah BransonNovember 19, 2018
A group of boot camp regulars will be working up a sweat for very different…
Hannah BransonNovember 15, 2018
A Birmingham charity is marking National Trustees Week by appealing for people from the local…
Hannah BransonNovember 15, 2018
A student who was diagnosed with the incurable condition, auto-immune liver disease, two years ago,…
Hannah BransonNovember 14, 2018
We at CLDF are delighted to welcome the launch of B+, a streetwear clothing brand…
Hannah BransonNovember 12, 2018
CLDF has say on potential new Scottish legislation The Human Tissue (Authorisation) (Scotland) Bill was…
Hannah BransonNovember 8, 2018
A nurse from Stourport, who was born with a rare liver disease and received a…
Hannah BransonNovember 8, 2018
Clare Frenay from Elmdon has never let the fact that she was born with a…
Hannah BransonNovember 8, 2018
European Reference Networks (ERNs) connect patients, clinicians and researchers across Europe. They allow knowledge and…
Hannah BransonNovember 8, 2018
Naomi Richardson Second year PhD student University of Birmingham, Institute of Immunology and Immunotherapy What…
Hannah BransonNovember 8, 2018
Why not get the family involved in a local Santa run this festive season and…
Hannah BransonNovember 8, 2018
Gary Hammond from Darlington made the trip down to London at the weekend (October14) to…
Hannah BransonOctober 23, 2018
CLDF is concerned at statitsics announced at last week’s Community Practitioners and Health Visitors Association…
Hannah BransonOctober 22, 2018
CLDF has joined forces with the British Society of Paediatric Gastroenterology Hepatology and Nutrition (BSPGHAN)…
Hannah BransonOctober 22, 2018
CLDF is concerned to see that the latest figures from the National Childhood Measurement Programme…
Hannah BransonOctober 17, 2018
For families affected by childhood liver disease, medication becomes part of the daily routine for…
Hannah BransonOctober 17, 2018
As a family affected by childhood liver disease, it is likely that at some stage…
Hannah BransonOctober 17, 2018
Children who are affected with childhood liver disease, are often faced with having regular blood…
Hannah BransonOctober 17, 2018
One of our lovely families has taken a step further to commemorate their daughter’s liver…
Hannah BransonOctober 16, 2018
In 2015, I wrote a blog about my experience of being at university with a…
Hannah BransonOctober 10, 2018
We were delighted to welcome 180 guests to our National Conference at the weekend (October…
Hannah BransonOctober 9, 2018
Emergency services in the north west will be coming together for a great cause on…
Hannah BransonOctober 3, 2018
We are delighted to report that the story book introduced by CLDF to explain the…
Hannah BransonSeptember 26, 2018
In his day job as a cook at the Boathouse Bistro at Gosport Marina, Simon…
Hannah BransonSeptember 20, 2018
Stephanie Cawthorne will be fulfilling a long-held ambition on November 1 when she heads to…
Hannah BransonSeptember 6, 2018
Zak Durrani, who currently lives in Ingleby Barwick, will be fulfilling a long held ambition…
Hannah BransonSeptember 3, 2018
A 13 year old girl from Bargoed in Caerphilly who was born with a rare…
Hannah BransonJuly 30, 2018
Scottish families whose children have liver disease got together last weekend at a special event…
Hannah BransonJuly 30, 2018
We love to share our young people’s stories on our website and we know how…
Hannah BransonJuly 25, 2018
CLDF is now taking applications for any of those who are filling in Drop-Out places…
Hannah BransonJuly 24, 2018
Big hearted staff at Domino’s in Garforth showed that they are more than just great…
Hannah BransonJuly 9, 2018
Tom Brading from Gosport is busy training for a 900 mile cycle ride. Next month…
Hannah BransonJuly 5, 2018
A mother of two from Cheltenham is planning a sky dive to raise funds for…
Hannah BransonJune 26, 2018
Going off to primary school is a major milestone for any child. When Grace Kelly…
Hannah BransonJune 26, 2018
Angela Stewart from Westerwood is no stranger to running. She has completed several marathons over…
Hannah BransonJune 19, 2018
May was a marathon month for 12-year-old Troy Parfitt from Corsham. He and his best…
Hannah BransonJune 14, 2018
Midlands businesses will have the opportunity to learn about the work of a national charity…
Hannah BransonJune 13, 2018
A grandmother from Witney is planning to celebrate her 60th birthday by cycling from London…
Hannah BransonJune 7, 2018
A 23 year-old man from Stoke Ash is looking forward to taking up his place…
Hannah BransonJune 5, 2018
Carmelina Alongi and Daimon Wellington from Virginia Water did their first running event last month…
Hannah BransonMay 30, 2018
Eight year-old twins, Sophie and Megan Tubman, are taking on an ambitious challenge this month…
Hannah BransonMay 17, 2018
Do you have a few hours to spare to help a Midlands children’s charity? If…
Hannah BransonMay 11, 2018
Jonathan and Danielle Roscoe from Norwood, Southport will be trekking up Snowdon next weekend (May…
Hannah BransonMay 11, 2018
A fundraising ball to commemorate what would have been the 18th birthday of Millie Watts…
Hannah BransonMay 10, 2018
Birmingham based national charity, Children’s Liver Disease Foundation (CLDF) is delighted to be a chosen…
Hannah BransonMay 1, 2018
Thank you to all the families who joined us at our recent Northern Ireland family…
Hannah BransonApril 18, 2018
Laura Bedward from Helmshore in Rossendale, is preparing to run the London Marathon next weekend,…
Hannah BransonApril 17, 2018
Pupils at Hall Green Primary School in West Bromwich had a ‘Big Yellow Friday’ before…
Hannah BransonApril 16, 2018
Tom Bagley is excited to be taking part in next weekend’s London Marathon to raise…
Hannah BransonApril 13, 2018
Jon Else from Altrincham is heading to London next weekend to take part in the…
Hannah BransonApril 12, 2018
Graham Keith will be pounding the streets of London with thousands of others in the…
Hannah BransonApril 12, 2018
Olly Baker from Longfield, will be taking part in the London Marathon. He has a…
Hannah BransonApril 9, 2018
Children’s Liver Disease Foundation are excited to launch our new-look T-Shirts with a design by…
Hannah BransonApril 4, 2018
A highly competitive Pickle Wars not only saw event organiser, Terry Ashdown crowned 'Pickle King'…
Hannah BransonApril 3, 2018
The pupils of Mayals Primary School's Enterprise Group in West Cross, Swansea, held a Big…
Hannah BransonMarch 26, 2018
Big Yellow Friday is Children's Liver Disease Foundation's biggest fundraising day of the year, as…
Hannah BransonMarch 26, 2018
Scorpios Salon and Barbers in North Baddesley held a yellow themed coffee morning for CLDF…
Hannah BransonMarch 23, 2018
Staff at BP stores in Kent, Essex, Sussex, Hampshire, London and Brighton areas have raised…
Hannah BransonMarch 23, 2018
Children's Liver Disease Foundation has awarded grants to three new research projects
Hannah BransonMarch 22, 2018
Thank you to all the families who joined us at our recent Cardiff family day…
Hannah BransonMarch 20, 2018
Jemima and Adebowale's youngest child, Halima, was born with the rare liver disease, biliary atresia.…
Hannah BransonMarch 13, 2018
Many people would balk at the idea of doing a skydive on Friday 13th but…
Hannah BransonMarch 12, 2018
Just six months after receiving the shattering news that their baby daughter had a rare…
Hannah BransonMarch 12, 2018
Fourteen BP stores throughout Gloucestershire, Swindon, Bristol and Wales have spent January fundraising for Children's…
Hannah BransonMarch 8, 2018
Grace had her long locks cut at school as part of their fundraising activities for…
Hannah BransonMarch 6, 2018
The weather may have brought most of the country to a standstill on Friday but…
Hannah BransonMarch 5, 2018
Thomas was born in March 2017 and was just eight days old when his GP…
Hannah BransonMarch 1, 2018
Grace is going above and beyond this Big Yellow Friday, cutting her long hair in…
Hannah BransonFebruary 27, 2018
Although we are promised wintry weather this week, the UK will turn a sunshiny shade…
Hannah BransonFebruary 26, 2018
A line up of first class comic talent is on offer at Altrincham's Cinnamon Club…
Hannah BransonFebruary 26, 2018
Not many grooms would choose to cycle 240 miles to their wedding venue but that…
Hannah BransonFebruary 20, 2018
A new story book, designed to help children who are facing a liver transplant, has…
Hannah BransonFebruary 15, 2018
Imogen was a VIP guest at Leoni UK last week when she accepted a cheque…
Hannah BransonFebruary 13, 2018
When Hannah did the Great North Run in 2016, it certainly gave her the running…
Hannah BransonFebruary 8, 2018
Children's Liver Disease Foundation has welcomed the launch of the Government's consultation into a proposed…
Hannah BransonFebruary 1, 2018
Children with liver disease commonly suffer from dental problems
Hannah BransonFebruary 1, 2018
Mum Rachel shared her son James’ story about fundraising for Big Yellow Friday in school
Hannah BransonFebruary 1, 2018
Our son underwent a lifesaving operation, a liver transplant which wouldn't have been possible without…
Hannah BransonJanuary 31, 2018
A mum from Poole, whose son was given a life-saving liver transplant two years ago,…
Hannah BransonJanuary 31, 2018
Stephanie Cawthorne will be fulfilling a long held ambition in November when she heads to…
Hannah BransonJanuary 30, 2018
Being affected by childhood liver disease, having bloods taken is key for many children. However,…
Hannah BransonJanuary 26, 2018
Pickling onions are flying off the shelves in the Isle of Wight as competitors prepare…
Alan HigginsJanuary 8, 2018
New Year’s Day will see the continuation of a Broadstairs tradition, with over 100 swimmers…
Alan HigginsDecember 22, 2017
A Portadown couple are looking forward to a very special Christmas now that their youngest…
Alan HigginsDecember 18, 2017
The Aberdeen branch of the Royal Scottish Country Dance Society has raised £300 for Children’s…
Alan HigginsDecember 15, 2017
The organisers of the 2018 British Transplant Games, which will be held in Birmingham, are…
Alan HigginsDecember 8, 2017
Birmingham based Children’s Liver Disease Foundation (CLDF) has received an early Christmas gift from bakergoodchild.…
Alan HigginsDecember 8, 2017