Supporting and promoting research into childhood liver disease is a vital part of CLDF’s work. We put patients and families at the heart of what we do and the development of the CLDF Research Hub will develop this further. The hub will support the involvement of young people and families affected by childhood liver disease in external research design and feasibility. It will help researchers to engage with patients improving the quality of research and increase the likelihood of paediatric liver research projects being funded by CLDF as well as external grant making bodies.
Role of the Research Hub:
- Work with patients, families and carers to set research priorities
- Support the researcher community to find volunteers willing to take part in research
- Support to communicate the impact of childhood liver disease research to those affected by the condition
- Provide patients and families with frequent updates on the latest developments in paediatric liver research, fostering greater understanding and engagement