Running for Eleanor, East Markham family raise £5000 to fight childhood liver disease

Children's Liver Disease Foundation — Tue, 10 Sep 2019 14:12:05 +0000

Amongst the 50,000 runners taking part in Sunday’s Great North Run were a Nottinghamshire family who were raising funds for Children’s Liver Disease Foundation (CLDF) a cause very close to their hearts.

Emily and Dan Wong from East Markham (near Tuxford) have received information and support from CLDF ever since their daughter, two year old Eleanor, was diagnosed with the rare liver disease, PFIC 1.

“PFIC 1 is one of many rare liver diseases which affect children and Eleanor requires multiple daily medications and regular medical checks,” says Emily who is a nurse in Newark. “Happily, she is doing well at the moment. She still has her gastrostomy tube and needs overnight feeds, but she is growing better, her speech is coming on and she’s a very happy little girl who is loving pre-school.”

“As a family we have found CLDF’s support invaluable and the research they fund is very important to us. We want to know, however that they will continue to be there for Eleanor as she grows up and, as keen runners, the Great North Run seemed a great way of giving something back.

“Dan and I did it last year and it enjoyed it so much we were determined to do it again and this time we were joined by my cousin Freddie (who lives in Shelton). Yesterday was another amazing experience. I finished in two hours 48 minutes while Dan achieved a personal best of two hours 12. The most important thing, however is that we have raised almost £5000 for a cause which means so much to us.”

Alison Taylor, Chief Executive of Children’s Liver Disease Foundation commented: “CLDF is the only UK charity dedicated to fighting all childhood liver diseases, by providing information and emotional support, funds for research and a voice for all those affected. In order to do this however, we rely on voluntary donations, so we are delighted to hear about the fantastic fundraising which Eleanor has inspired. Taking part in the Great North Run is a huge commitment in terms of time and training and we’re so pleased that Emily, Dan and Freddie enjoyed the experience. The money they raised will be benefit children like Eleanor throughout the UK.”

You can still support Emily and Dan’s Great North Run by going to

https://www.justgiving.com/fundraising/emily-wong5

For more information on CLDF visit childliverdisease.org.

The post Running for Eleanor, East Markham family raise £5000 to fight childhood liver disease appeared first on Childrens Liver Disease Foundation.

Super hero Aunty Chloe raises funds to fight childhood liver disease

Children's Liver Disease Foundation — Tue, 10 Sep 2019 14:11:14 +0000

Chloe Salusbury from Prenton stepped right out of her comfort zone this weekend when she completed Tough Mudder North West, raising £800 for a cause which means a lot to her, Children’s Liver Disease Foundation (CLDF).

Twenty-five year old Chloe was inspired to undertake the 5K, 25 obstacle course at Cholondeley Castle by her six year old nephew Oliver, who was born with the rare liver disease, alagilles syndrome.

“My brave, strong, funny, loving nephew has had numerous surgeries and medications to help with his liver condition and after a hard, long wait our wishes finally came true when he received his life-saving liver transplant just six weeks ago” says Chloe. “During this hard time Oliver and his parents have been utilising all of the help CLDF can provide. He is a real-life super-hero. I wanted to take on a heroic challenge which he would approve of and to give something back to a charity which we want to be there for him in the coming months and years.”

Chloe, who combines her job as a dance teacher with her role as a teaching assistant and sports coach at St Michael and All Angels Primary School, is no doubt fitter than most but she was first to admit that Tough Mudder was outside her comfort zone.

“I’m not a runner, I’ve never run more than 1.5 miles before, so it was really hard but also so much fun,” she said. “I didn’t stop laughing the whole time. I was dunked in ice water, stuck in the mud – it really was crazy but it was worth it and I will definitely do it again next year!”

Alison Taylor, Chief Executive of Children’s Liver Disease Foundation commented: “CLDF is the only UK charity dedicated to fighting all childhood liver diseases, by providing information and emotional support, funds for research and a voice for all those affected. In order to do this however, we rely on voluntary donations, so we are delighted to hear about Chloe’s fantastic fundraising. I hope Oliver is impressed – we certainly are. The money she has raised will help children like Oliver throughout the UK.”

You can still support Chloe’s Tough Mudder challenge by going to https://www.justgiving.com/fundraising/chloe-salusbury.

For more information on CLDF visit childliverdisease.org.

The post Super hero Aunty Chloe raises funds to fight childhood liver disease appeared first on Childrens Liver Disease Foundation.

childrens liver disease Archives - Childrens Liver Disease Foundation

Running for Eleanor, East Markham family raise £5000 to fight childhood liver disease

Super hero Aunty Chloe raises funds to fight childhood liver disease