skydive Archives - Childrens Liver Disease Foundation

Anastacia’s skydive to fight liver disease

Children's Liver Disease Foundation — Wed, 24 Jul 2019 13:29:15 +0000

A 17 year- old girl from Huntingdon will be taking to the skies next Sunday (July 21) to raise funds for a charity which means a great deal to her. Anastacia Aldrich will be doing a sky dive for Children’s Liver Disease Foundation, who have provided her with information and emotional support since she was diagnosed with auto-immune hepatitis when she was 12.

“It’s very tough being diagnosed with a rare lifelong condition at that age,” says Anastacia. “So many people just have no idea what you are going through. However, CLDF were there for me and put me in touch with other young people who live with liver disease. I even joined them for a film-making workshop last year with other teenagers. I not only met other people who understood me, but I was able to show my film at school to explain what it’s like to live with liver disease.

“The team were also there for my parents. I think it was just as tough for them and I know that my mum in particular appreciated a calm and reassuring voice on the end of the phone when she was having a bad day.”

Keen to give something back, Anastacia was thrilled when the opportunity to do a sky dive arose and has even done an indoor sky dive as practice. Now she can’t wait for the big day.

“I’m really excited,” she says. “This is something I’ve always wanted to do and to raise money for a cause which means so much to me makes it even better.”

Alison Taylor, Chief Executive of Children’s Liver Disease Foundation commented: “CLDF is the only UK charity dedicated to fighting all childhood liver diseases, by providing information and emotional support, funds for research and a voice for all those affected. In order to do this however, we rely on voluntary donations, so we are delighted that Anastacia has decided to do this for us. I’m sure it will be an amazing experience for her, and the funds she raises will enable us to continue to support young people like Anastacia around the UK.”

You can support Anastacia’s sky dive by going to:

https://www.justgiving.com/fundraising/anastacia-aldrich

The post Anastacia’s skydive to fight liver disease appeared first on Childrens Liver Disease Foundation.

Skydiving for Daniel – parachute jump raises £1000 to fight childhood liver disease

Children's Liver Disease Foundation — Thu, 16 May 2019 11:23:27 +0000

A mum of three from Lisburn will be fulfilling a lifelong ambition next Sunday (May 26) when she does her first sky dive, raising much needed funds for a cause very close to her heart, Children’s Liver Disease Foundation (CLDF).

Amanda Withers’ four year old son Daniel was born with the rare liver disease, Alagilles syndrome, and she and her family have had information and support from the charity ever since he was diagnosed.

“When your child has a rare disease, it’s easy to feel isolated but the CLDF team are always on hand with support, whether it’s over the phone by email or coming to see us when we are at hospital clinic visits,” says Amanda. “They also organise special weekends for families in Northern Ireland whose children have liver disease and we really enjoy these. It’s great to feel part of a family and realise that you’re not alone.

“A sky dive is something I have always wanted to do, so has my sister, Susanne, and my cousin, Ruth. We always said we would do it together but with myself and my sister having three children each, the past few years have never suited with someone always being pregnant! Now the time is right, and it seems the perfect way of raising some money for CLDF as a thank you. We’re delighted to have raised over £1,000 already. As the day gets nearer, we’re all very excited but sure the nerves will kick in on the day!

Alison Taylor, Chief Executive of Children’s Liver Disease Foundation commented: “CLDF is the only UK charity dedicated to fighting all childhood liver diseases, by providing information and emotional support, funds for research and a voice for all those affected. In order to do this however, we rely on voluntary donations, so we’re delighted to hear what Amanda, Susanne and Ruth have planned. We hope they enjoy the experience and the funds raised will continue to make a difference to families throughout the UK affected by childhood liver disease.”

You can support Amanda’s sky dive by going to https://www.gofundme.com/amandasusanne-amp-ruth039s-skydive

The post Skydiving for Daniel – parachute jump raises £1000 to fight childhood liver disease appeared first on Childrens Liver Disease Foundation.