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Living with liver disease has shaped me in positive ways

By May 18, 2026 No Comments

 

Music student Liam is loving life at Durham University and is a big believer that a medical diagnosis does not have to define your future. Here is his story:

I was diagnosed with biliary atresia at just eight weeks old at Birmingham Children’s Hospital and underwent a Kasai procedure at 11 weeks. I don’t remember that time, of course, but my parents have always told me how determined I was from the very beginning. My early years involved periods in and out of hospital with liver infections, but by the age of two my health began to stabilise. I remained on medication until I was 11, and since then I’ve been fortunate to enjoy good health. 

 

From a young age, I developed a strong connection with music. What began as curiosity at the piano turned into formal lessons at six, and during primary school I discovered a real love of singing, music and performing. I was involved in a number of musical theatre productions, and I also became an active member of my church choir. That introduced me to choral music and gave me the opportunity to learn the organ. 

Growing up, I rarely felt limited by my condition. I did avoid high-impact sports, which at times felt isolating, particularly when I was younger. However, music gave me both a focus and a sense of belonging. I threw myself into as many musical and non-musical ensembles as I could, building confidence and forming lasting friendships. 

 

I joined the Scouts at the age of six and became a volunteer at 14. Scouting has played a huge role in shaping who I am, giving me opportunities and experiences I will never forget. Through Scouting, I completed my Bronze, Silver and Gold Duke of Edinburgh’s Awards, taking part in walking, cycling and canoeing expeditions. 

After achieving strong GCSE results at The Castle School, I attended King’s College, Taunton on a music scholarship, where I studied A Levels in Music, Biology and History. After completing my A Levels and achieving Grade 8 in singing, piano and organ, I spent a gap year as a Choral Scholar at Sherborne School. During that time, I worked in the music department and sang regularly in Sherborne Abbey. It was a hugely valuable year for my development, and I was proud to achieve a piano diploma with distinction. 

 

 

I then went on to Durham University to study Music, where I am now in my second year. Alongside my degree, I hold a Choral Scholarship at Durham Cathedral, balancing a demanding academic and musical schedule. I’m also involved in a range of university societies, both musical and non-musical, and I continue to volunteer with a local Scout group in Durham. 

Now an adult, I lead a full and active life. For many years I was told I wouldn’t be able to drink alcohol, something my friends always respected. However, when I was 18, doctors at the Queen Elizabeth Hospital in Birmingham told me that, in moderation, I could. I still remember having my first pint at my local Wetherspoons on the day I finished my A Levels. These days, I’m very careful and keep my intake low, never exceeding seven units a week, but I’m grateful to be able to enjoy social occasions with friends. 

 

Looking back, living with liver disease has shaped me in positive ways. It has given me focus, resilience and a strong sense of perspective — qualities that continue to guide me as I look ahead to the future. 

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