CLDF BLOGS

The latest blogs for CLDF families and supporters

It’s time to get the picnic rugs out!

It’s hard to believe sometimes but the picnic season really is upon us! We’re encouraging as many of you as possible to have a Big Bears’ Picnic to raise funds for CLDF this summer. Here Alice explains how easy it is.   “My son, Bertie, opened a mailer from CLDF about Big Bears’ Picnic and […]

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My future was a bit of the unknown

We’re delighted to bring you the story of Louise who was born with biliary atresia and still has her native liver – 35 years later!  We hear first of all from Louise’s mum Alison. Louise and her twin Bryan were born in Edinburgh on June 11 1984. We were kept in hospital for a week […]

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‘You help us feel less isolated’ – Jayden’s story

‘You help us feel less isolated’ – Jayden’s story. Jayden, who is eight and comes from Liverpool, was just a few months old when his family noticed he had a lump in his side. “We took him to the GP who said it was nothing to worry about” says his grandad Stephen. “But I’m a […]

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My First Talk, Tell, Transform by CLDF’s Head of Support

Talk, Tell, Transform 2019 success! Our Head of Support, Michelle Wilkins, attended her first TTT in February. Here she gives an insight into how the event went and what she personally took from it. As the new Head of Support my background had been in supporting the whole family but not particularly on working directly […]

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Why Lisa Loves Fundraising

Why I love fundraising  by Lisa We’re lucky at CLDF to have so many supporters who keep coming up with fantastic fundraising ideas. This year Lisa, whose six year old daughter Sophie has biliary atresia, has organised a Big Yellow Friday party and persuaded two colleagues to cycle from Land’s End to John O’ Groats! […]

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Hannah’s story

We are very grateful to 14 year old Hannah for sharing her brilliant and moving account of being diagnosed with liver disease…. I was sitting in the back seat of my Dad’s car coming home from an 11-day stay at the hospital, feeling like l was floating in mid-air. l couldn’t believe what had happened […]

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Madeline’s making a splash

  Congratulations to 17 year old Madeline from Ipswich who, despite having had a tough two years since being diagnosed with autoimmune liver disease and then chronic fatigue syndrome, has just qualified as a lifeguard.   Proud mum, Natalie takes up the story: “My daughter Madeline has always been sporty. She has been scuba diving […]

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Running for Hannah – Amanda takes on her first marathon

Like many mums, Amanda Wallace from Mosborough in Sheffield, leads a very busy life. As well as looking after daughters, seven year-old Mia and two year old Hannah, she is also a speech and language therapist, specialising in adult head and neck cancer. On top of this, however, Amanda is also training for the London […]

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Liz and Paul plan an anniversary celebration with a difference

When it comes to celebrating a Golden Wedding anniversary, many couples like to do something special – a big family party maybe or a fabulous holiday. Liz and Paul Jenkins, from Bournemouth, however, will be marking 50 years of marriage by running the London Marathon, in order to raise funds for a cause very close […]

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Scotland Family Weekend

Following on from last year’s event, CLDF had yet another successful Scotland Family Weekend in March. However, this time there was a slight twist! Lois- CLDF’s Families Support Officer explains why this years Scotland Weekend was different and the impact this had on the families that attended: “This was the first time we had a […]

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