CLDF BLOGS

The latest blogs for CLDF families and supporters

Running for Hannah – Amanda takes on her first marathon

Like many mums, Amanda Wallace from Mosborough in Sheffield, leads a very busy life. As well as looking after daughters, seven year-old Mia and two year old Hannah, she is also a speech and language therapist, specialising in adult head and neck cancer. On top of this, however, Amanda is also training for the London […]

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Liz and Paul plan an anniversary celebration with a difference

When it comes to celebrating a Golden Wedding anniversary, many couples like to do something special – a big family party maybe or a fabulous holiday. Liz and Paul Jenkins, from Bournemouth, however, will be marking 50 years of marriage by running the London Marathon, in order to raise funds for a cause very close […]

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Scotland Family Weekend

Following on from last year’s event, CLDF had yet another successful Scotland Family Weekend in March. However, this time there was a slight twist! Lois- CLDF’s Families Support Officer explains why this years Scotland Weekend was different and the impact this had on the families that attended: “This was the first time we had a […]

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CLDF’s Breakaway

        Thirteen year old Melissa took part in CLDF Breakaway last year and had a great time!   We asked Melissa to tell us a little about her experience and this is what she had to say: “It was excellent! I loved every part of it. At first, I felt excited to […]

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Chefs’ Gala dinner success

    What an amazing evening we had at the Chefs’ Gala Dinner last night – a wonderful meal served in magnificent surroundings, the chance to meet so many of our supporters and update them on our work, which would not be possible without all your support!.  A huge thank you to Executive Chef, Simon […]

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Why Larry has a leading role

  On a recent visit to Birmingham Children’s Hospital, Louise from our support team was thrilled to meet a VIP guest, Larry the Liver Monkey, who was accompanying four year old Ethan to his clinic appointment. “Ethan was very keen for me to meet Larry and I can understand why,” says Louise. “He’s very lovely […]

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How living donation transforms lives – Annie’s story

  Sean and Sophie’s four-year-old-daughter, Annie was born with biliary atresia. “Annie’s bile ducts were damaged and did not function properly,” explains Sean. “She had a Kasai to try and correct the problem, but it was unsuccessful and, by the time she was six months old, she was on the waiting list for a liver […]

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Wales Family Weekend 2019

The Children’s Liver Disease Foundation organises events around the country for families and patients. This is a chance to get together, share experiences and enables families/patients to build a network of support. Thanks to our funders, we are now able to extend to Wales, following the success from the first Scotland Family Weekend last year. […]

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Talk, Tell, Transform A Truly Inspring Week!

Thank you to all our young people who attended Talk, Tell, Transform last month. Each year our young people never fail to amaze us, and we are so proud of the progress they all made throughout the week! TTT can often be a challenge  for  young people  as they are faced with the reality of […]

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Isobel’s story

We’re very grateful to Isobel for this truly honest account of how having a child with liver disease has affected her: It has taken me an awfully long time to sit down and write this blog. I had a blank canvas: no time limit, no word limit, no deadlines, no titles, just a blank sheet […]

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