CLDF News

The latest news for CLDF families and supporters

CLDF concern at public health decision

  CLDF has expressed concern at the Government announcement that public health budgets should remain under local authority control, following speculation that the NHS would take control of health visitor and school nurse services. “As local authority budgets have been cut, health visitor numbers have fallen. Health visitors really are in the front line when […]

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Curtis says thank-you with a rockabilly fundraiser

With just a week to go a handful of tickets are still available for the Rockabilly Charity All Dayer, a special event organised by rockabilly fan, Curtis Knott, to raise funds for a charity close to his heart, Children’s Liver Disease Foundation (CLDF). Twenty-one year old Curtis from Gilmorton, was born with the rare liver […]

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CLDF Education Pack

Starting or changing school is a big event for any child but when that child has a liver condition, there may be real concerns and anxiety from parents about how their child’s needs will be met. It’s why we produce an education pack which tells schools, nurseries and colleges what they need to know about […]

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CLDF backs call for increased investment in public health

CLDF backs call for increased investment in public health CLDF is one of a number of charities who have co-signed a letter sent today to Matt Hancock (Secretary of State for Health and Social Care) and James Brokenshire (Secretary of State for Housing, Communities and Local Government) on 7 May 2019. The letter calls on […]

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National Siblings Day

Today  is #NationalSiblingsDay! In 2018 Rare Disease UK asked children, young people and siblings affected by rare diseases about their experience of living with a rare condition. Their report found that siblings understand a great deal about their brother or sister’s care and develop skills in empathy and compassion, despite facing challenges.   We at […]

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Chefs’ Gala Dinner raises over £100,000

  We’re delighted to announce that the CLDF Chefs’ Gala Dinner which took place at the Jumeirah Carton Tower in Knightsbridge on March 18 has raised £106,500. It’s a tremendous total to raise in one evening and once again our thanks go to everyone involved, especially the chefs from the country’s finest hotels and restaurants […]

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Prescription charges increase hits young people

The cost of prescriptions increases to £9 today and many of our young people feel strongly that they should be exempt from charges. In support of their views, CLDF is part of the Prescription Charges Coalition, a group of nearly 40 organisations campaigning to end prescription charges for people with long-term medical conditions. Here, Joanna, […]

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Operation Ouch! Nominations OPEN!

Nominations open! Are you, or do you know someone, aged 6-16 who is a medical hero? The Ouch! Awards are back and CBBC’s Operation Ouch! wants to hear from you! Find out more here:Operation Ouch! awards open now!

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CLDF echoes call to reverse cuts

CLDF echoes call to reverse cuts     CLDF is echoing calls from the Local Government Association to reverse the recent public health reductions in the upcoming Spending Review to ensure that enough support is given to those aged 0-5. Since 2015 there has been a 20 percent fall in children’s health visitors, who perform […]

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CLDF welcomes ‘game-changer’ system for liver storage

We welcome the news that a new system for storing livers before transplant has been approved for use on the NHS. Perfusion machines store donated livers at body temperature, rather than on ice, which slows the deterioration of the organ. It is hoped that this will lead to more patients on the waiting list being […]

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