CLDF News

The latest news for CLDF families and supporters

National Siblings Day

Today  is #NationalSiblingsDay! In 2018 Rare Disease UK asked children, young people and siblings affected by rare diseases about their experience of living with a rare condition. Their report found that siblings understand a great deal about their brother or sister’s care and develop skills in empathy and compassion, despite facing challenges.   We at […]

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Chefs’ Gala Dinner raises over £100,000

  We’re delighted to announce that the CLDF Chefs’ Gala Dinner which took place at the Jumeirah Carton Tower in Knightsbridge on March 18 has raised £106,500. It’s a tremendous total to raise in one evening and once again our thanks go to everyone involved, especially the chefs from the country’s finest hotels and restaurants […]

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Prescription charges increase hits young people

The cost of prescriptions increases to £9 today and many of our young people feel strongly that they should be exempt from charges. In support of their views, CLDF is part of the Prescription Charges Coalition, a group of nearly 40 organisations campaigning to end prescription charges for people with long-term medical conditions. Here, Joanna, […]

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Operation Ouch! Nominations OPEN!

Nominations open! Are you, or do you know someone, aged 6-16 who is a medical hero? The Ouch! Awards are back and CBBC’s Operation Ouch! wants to hear from you! Find out more here:Operation Ouch! awards open now!

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CLDF echoes call to reverse cuts

CLDF echoes call to reverse cuts     CLDF is echoing calls from the Local Government Association to reverse the recent public health reductions in the upcoming Spending Review to ensure that enough support is given to those aged 0-5. Since 2015 there has been a 20 percent fall in children’s health visitors, who perform […]

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CLDF welcomes ‘game-changer’ system for liver storage

We welcome the news that a new system for storing livers before transplant has been approved for use on the NHS. Perfusion machines store donated livers at body temperature, rather than on ice, which slows the deterioration of the organ. It is hoped that this will lead to more patients on the waiting list being […]

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Your chance to dine in style at an evening to remember

With just eight weeks to go, preparations are well underway for the Chefs’ Gala Dinner, our flagship fundraising event where four of the country’s top chefs prepare a fabulous four course meal, in a five-star hotel in the heart of London’s Knightsbridge. Over the years, this glittering occasion has provided hundreds of guests with a […]

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Happy New Year!

Happy New Year!   Happy New Year to all our families and young people. It was lovely to return after our Christmas break to see that so many people had booked onto our 2019 event programme. It’s brilliant to know that we shall be catching up with lots of familiar faces on our travels around […]

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New support for families in Scotland

We’re delighted to welcome Kate Conroy to CLDF as our Scotland Support Officer. Kate will be boosting the support we offer in Scotland by meeting families at clinics and introducing them to our services . She will also be working with our Children and Families officer, Lois, to provide support to individual families where needed. […]

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Has your child had the flu vaccination?

Did you know that if your child is aged six months or over and has a long term health condition they should receive a free flu jab? If your child is immunosuppressed, either due to transplant or their treatment, they could still have inactivated vaccines and should take advice from their consultant before having live […]

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