Our families are at the heart of everything we do, which is why the views of parents and carers are so important to us. Our Parent and Carer Advisory Group meet virtually once every three months and while we find our members’ input incredibly valuable in shaping the services we offer to young people and families, it’s great to know that the group members find it equally beneficial.
Here are some of the reasons why people take part:
“It’s felt great to help shape the future voice as CLDF and the British Liver Trust come together. I’m proud to give something back to a charity that’s supported so many families, including mine. It’s inspiring to be in a group where parents’ and carers’ views aren’t just heard – they’re genuinely valued”.
“We’ve been involved in providing advice and guidance on information leaflets, webpage information and more recently being involved with some of the rebranding of the website for the merger between CLDF and BLT. I feel privileged to be able to give vital “inside” knowledge to those parents and carers that are just starting out on their liver journey”.
“I’m really proud to be part of the PCAG as it feels like we are really involved in making meaningful changes when needed or putting our thoughts forward to help guide information from a parent’s perspective. It also is really insightful for me as a parent as it can help with ideas about things I could change at home to help our son manage his condition”.
“People have different reasons for wanting to be part of the PCAG and everyone brings something different,” says Head of Children’s and Families’ Services, Michelle.” Due to the very nature of the group, though, there will invariably be occasions when someone can’t join us so we’re always keen to welcome new members.
“If you’d like a meaningful input into the charity’s work, this is a great way of doing so. We have several mums in the group, so we’d be particularly keen to hear from dads and other male carers. Experience tells us that dads have just as many views as mums but can be a bit more reluctant to voice them, so don’t be shy, we’d love to hear from you!”
If you’d be interested in being a part of our Parent and Carer Advisory Group or would like to know more about it, email headsupport@childliverdisease.org.
