CLDF was started by families for families. We’re delighted to share here the stories of the people who have shaped CLDF and those for whom the charity has played a part in their lives.

If you would be happy to share your own story please email press@childliverdisease.org or click here.

How it all began…..

Our families are at the heart of everything we do and CLDF began with one family’s story. Here, in this moving article we have reproduced from The Sunday Times in 1979, Peter and Sonia McGough explain why they started The Michael McGough Research Fund.

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The early days of the charity

Barry Barton was the first director of the Michael McGough Foundation, which later became Children’s Liver Disease Foundation. Here he tells his story.

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Rosie’s Story

Rosie’s story shows just how limited the medical treatment was for children with liver disease 40 years ago. Here she shares her story about her daughter Felicity.

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Where are they now? – Clare’s Story

Clare features on the front cover of CLDF’s first supporter magazine, CHILD, which was published in 1990. Aged seven, she had just had a liver transplant at Birmingham Children’s Hospital. Here Clare, who was born with biliary atresia, describes her experience of growing up with a liver disease.

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British Paediatric Surveillance Unit Survey on Biliary Atresia – A Game Changer for Children’s Liver Disease Foundation? By Catherine Arkley

In 1999 the Department of Health (DoH) designated surgery for biliary atresia to be confined to specialist children’s liver units in England and Wales. In addition, they decided there would a third specialist children’s liver centre established, based in Leeds. Catherine Arkley, former CLDF Chief Executive, writes about the background, what happened and why it was so important.

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Where are they now? Lucy’s story

Lucy, who is now 32, is a familiar face from CLDF magazines over the years. Here, she tells her story.

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Where are they now? Alex’s story

Alex, who is 22, has biliary atresia and was featured on the front cover of CLDF’s Delivery Easter Extra in 1999. He had a successful Kasai procedure when he was seven weeks old and as a child, didn’t give much thought to his liver condition. Alex and his parents share their experiences.

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Where are they now? Millie’s story

Millie, who has Alagille syndrome, featured on the front cover of Delivery magazine in 2002, with her dad, who had run the London Marathon. Her mum, Alison, explains why fundraising is important to her family.

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Celebrating 27 years with my new liver

Many of the young people we support are living full and active lives thanks to their liver transplant. Jane’s daughter, Naomi, celebrates the 27th anniversary of her liver transplant this month.

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Where are they now? The Redgates

Karen and David and daughter, Emma, who is now 20, have appeared in numerous CLDF publications over the years. Here the family explain what the charity means to them.

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I know how lucky we are – Margaret’s Story

Margaret has been an office volunteer for CLDF for 27 years. Thirty years ago, this month, her son, Chris, received a liver transplant. Here is her story.

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Emily’s Story

When Carol and Peter’s daughter, Emily, was born with liver problems, CLDF didn’t even exist. Here is their story.

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Why we run for CLDF

Paul and Liz have always been keen runners. When their grandson was born with a rare liver disease 22 years ago, running became a way of fundraising as well as a hobby. Here Liz tells their story.

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Erin’s Story

Ten year old Erin has just celebrated her ten year transplant anniversary. Her parents, Kirstin and Jamie, share her story.

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Aarron’s Story

Aarron’s mum, Jacqueline, explains why CLDF is important to her family and its impact on Aarron.

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Georgina’s Story

Although Georgina was born with a childhood liver disease, it was not until she was an adult that her condition had a major impact on her. Here is her story.

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