CLDF was started by families for families. We’re delighted to share here the stories of the people who have shaped CLDF and those for whom the charity has played a part in their lives.
How it all began…..
Our families are at the heart of everything we do and CLDF began with one family’s story. Here, in this moving article we have reproduced from The Sunday Times in 1979, Peter and Sonia McGough explain why they started The Michael McGough Research Fund.
Where are they now? – Clare’s Story
Clare features on the front cover of CLDF’s first supporter magazine, CHILD, which was published in 1990. Aged seven, she had just had a liver transplant at Birmingham Children’s Hospital. Here Clare, who was born with biliary atresia, describes her experience of growing up with a liver disease.
British Paediatric Surveillance Unit Survey on Biliary Atresia – A Game Changer for Children’s Liver Disease Foundation? By Catherine Arkley
In 1999 the Department of Health (DoH) designated surgery for biliary atresia to be confined to specialist children’s liver units in England and Wales. In addition, they decided there would a third specialist children’s liver centre established, based in Leeds. Catherine Arkley, former CLDF Chief Executive, writes about the background, what happened and why it was so important.
Where are they now? Alex’s story
Alex, who is 22, has biliary atresia and was featured on the front cover of CLDF’s Delivery Easter Extra in 1999. He had a successful Kasai procedure when he was seven weeks old and as a child, didn’t give much thought to his liver condition. Alex and his parents share their experiences.
Where are they now? Millie’s story
Millie, who has Alagille syndrome, featured on the front cover of Delivery magazine in 2002, with her dad, who had run the London Marathon. Her mum, Alison, explains why fundraising is important to her family.
Celebrating 27 years with my new liver
Many of the young people we support are living full and active lives thanks to their liver transplant. Jane’s daughter, Naomi, celebrates the 27th anniversary of her liver transplant this month.
Where are they now? The Redgates
Karen and David and daughter, Emma, who is now 20, have appeared in numerous CLDF publications over the years. Here the family explain what the charity means to them.
I know how lucky we are – Margaret’s Story
Margaret has been an office volunteer for CLDF for 27 years. Thirty years ago, this month, her son, Chris, received a liver transplant. Here is her story.
Why we run for CLDF
Paul and Liz have always been keen runners. When their grandson was born with a rare liver disease 22 years ago, running became a way of fundraising as well as a hobby. Here Liz tells their story.