Liver Stories

Here are the real life stories of people who are affected by childhood liver disease.

If you would like to share your own story, please click here.

The Transplant Girl

We love to share our young people’s stories on our website and we know how valuable many of our families find them. Twenty two year old Akua Kezia, who is in her final year studying for a degree in  Probation and Community Justice, has taken that sharing a stage further by publishing her own book. […]

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Steven’s plea for organ donors as he looks forward to a fresh start

A 23 year-old man from Stoke Ash is looking forward to taking up his place at university this year after a lifetime of health problems has severely disrupted his education. Steven Featley was born with the rare liver disease, biliary atresia. He received a life-saving transplant at Kings College Hospital, London, when he was just […]

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Halima’s story

Jemima and Adebowale’s youngest child, Halima, was born with the rare liver disease, biliary atresia. Here Jemima tells her story.

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Thomas’s Story

Thomas was born in March 2017 and was just eight days old when his GP referred him to hospital, which is where his family met Children’s Liver Disease Foundation

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Dennis’ Liver Journey

Our son underwent a lifesaving operation, a liver transplant which wouldn’t have been possible without the generosity of the kind young man or his family making the most difficult decision to donate his organs in a most devastating time.

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Melissa’s story

For eleven year old Melissa, who has the rare liver condition, biliary hyperplasia, the first time she met other young people with a liver condition was at CLDF’s Chocolate and Pottery Day in Worcester.

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Carolina’s story

When we were told that our son, Hugo had biliary atresia, it felt like the end of the world. One of the nurses at Kings gave us a leaflet about CLDF but I didn’t call straight away.

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Sam’s story

The support CLDF provided in the first few weeks of diagnosis was priceless to us. My instinct told me just weeks after having my twin boys that there was something wrong with Reid

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Jamie’s story

I was nine years old when I was diagnosed with Budd Chiari syndrome, a rare liver disease I had never heard of. I try to make sure it doesn’t interfere with my life too much but it does mean that I have to take medication and I do have lots of hospital appointments.

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Alex’s story

Alex knew that something was wrong with her newborn baby. Encouraged by her best friend Laura to follow her instincts, she took her to hospital but she wasn’t prepared for the news the doctors gave her.

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