The European Reference Network (Rare Liver) have developed an anonymous survey to understand how coronavirus has affected those with autoimmune liver conditions such as autoimmune hepatitis (AIH) and primary sclerosing cholangitis (PSC).
You can complete the survey even if you/your child has not contracted coronavirus. Parents of children under 16 can complete the survey on their child’s behalf.
It is incredibly important that we gather as much information about this as we can so that professionals across the world can use this knowledge to provide more informed advice and treatment for a virus that is new to all communities. You can help by taking a few minutes out to complete the survey and add to the collection of evidence and data.
Read more and follow the link to the survey in the patient information leaflet: Autoimmune liver disease and COVID 19 survey version_English
Alternatively click this link to complete the survey: https://ec.europa.eu/eusurvey/runner/RARE-LIVER_Covid-19_survey
