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Living without a diagnosis

All childhood liver diseases are rare but living without a diagnosis can be particularly difficult. We have updated our leaflet which contains advice and information for young people and families who are in this situation.

“We’d like to thank the liver unit at Kings College Hospital, the parents on our information panel and in particular a young person currently living without a diagnosis, who reviewed this information for us,” said Harpreet Brrang, CLDF’s Information and Research Hub Manager.

The new leaflet is available to view or download from our website here. If you would prefer to receive a copy in the post you can request one here although please bear in mind these will take a little longer than usual to post out due to the current restrictions.

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