European Reference Networks (ERNs) connect patients, clinicians and researchers across Europe. They allow knowledge and expertise about rare diseases to be shared across Europe; providing patients with access to diagnosis and transformative care, without the burden of long-distance travel. The #ProtectERNs campaign is calling on the UK Government and the EU to secure the sustained involvement of the UK in ERNs.
For too long patients and families affected by rare conditions across Europe have struggled to access a correct diagnosis, specialist knowledge, and appropriate treatment.
Show your support by adding your name to #ProtectERNs campaign here: #ProtectERNs