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Liver Stories

Kaylee climbs Pen y Fan to help fight childhood liver disease

By July 30, 2018 No Comments

A 13 year old girl from Bargoed in Caerphilly who was born with a rare liver disease has done a sponsored walk to raise over £400 for Children’s Liver Disease Foundation (CLDF).

Kaylee Wood has Alagille syndrome, a condition which affects the liver, kidneys, heart, and eyes. There is no cure for Alagilles so Kaylee takes daily medication and has regular hospital appointments. As she is currently well, Kaylee was keen to do something for the charity which has provided her family with information and support since her diagnosis.

“CLDF means a lot to me,” she explains. “And I wanted to do something to help other kids like me. So my dad and my friend Hannah said they would join me on a sponsored walk. We walked up and over Pen y Fan and Corn-Du. It took us two hours and 40 minutes but it was a beautiful day and we all really enjoyed it. It was so nice to be able to walk up a mountain with stunning views for such amazing cause. I’m so proud that I was able to complete it and especially to have raised so much for a charity so close to my heart.”

Alison Taylor, Chief Executive of Children’s Liver Disease Foundation commented: “CLDF is the only UK charity dedicated to fighting all childhood liver diseases, by providing information and emotional support, funds for research and a voice for all those affected. In order to do this however, we rely almost entirely on voluntary donations so we’re delighted that Kaylee did this for us. She should be super proud of herself for completing the challenge and her fundraising total which will benefit young people like her throughout the UK.”

You can still support Kaylee by going to

For more information on CLDF visit

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